Oh what a day. Gloriously fun, relaxing day. There were even points in the day when for a few moments we forgot what was directly laying before us. That was a blessing. This was not just any regular July 4, this was the last day of pure unadulterated fun before a not so fun time – so we decided to soak it up!
For a few years now we’ve had a tradition of having some of our closest friends over for food and fun then migrating towards UNT for the fireworks show. We had already had this all planned out before we got our CoA diagnosis nearly 2 weeks ago and weren’t about to cancel it. What would be the point in that?!? So around 5 everyone got here. Burgers and dogs were cooked, our nearest and dearest friends were all around us, kids were playing it was everything we could hope for.
Here are a few of my favorite pictures of today.
I'm usually a sugar nazi but we figured, he's having heart surgery in 2 days... let him eat (cup)cake!
Our sweet little family (plus P's love) after fireworks
Yep, this is our little heart patient!
We have memories of some of our favorite July 4ths past and this one will be no exception. The difference is we will have these memories to look back on in the days to come that are tough. They will make us smile and help us look forward to July 4, 2012 when P’s heart will be better and all will be right with the world again.
Tomorrow early afternoon we go in for a CT Scan of all of Pierson’s cardiovascular system. We also have blood tests and x-rays. Please pray for us. Tomorrow will be a long day for Pierson. Pray he continues to be an amazingly fantastic patient. Pray that he doesn’t get too hungry or thirsty since we won’t be able to do much other than popsicles early in the morning tomorrow. Pray for distraction for P. Pray for Jeff and I to be attentive listeners and be acutely aware of what Pierson’s needs are and what we need to be doing to make this as easy as possible for him.
It blows my mind to think that the day after tomorrow we will be spending the night in the CHICU with our baby hooked up to monitors and machines. We covet your prayers!
God is already giving you strength and direction and wisdom which is evidenced by your living each day to the fullest and looking to God for your provisions. I will be praying that you will experience the peace that passes all understanding today and in the days to come. Love you! "Grandma" Dot
ReplyDeleteWe are praying for yall. Caiden wants to give P some fist pumps. We are praying for your family and all we can say is stay strong in the Lord!! He is so good and will help you through this. I pray for peace in your hearts and know he is in the best hands possible. Caiden is living proof! God Bless you all.
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